Saturday, October 24, 2009
Wave of illnesses!
This is not a typical post for me, more of a "how we are doing" thing.
I am just reeling from this last week! Tonight is the first time since Friday that I am really able to get out of bed...so I am starting slow...computer time. Looking for a rental to move to (know of one?) and catching up on e-mails etc.
A week ago Thursday, my little princess has some severe abdominal pain that nearly landed us in the ER. It went on for over an hour, in 2 different episodes. We were on the way to the ER at 11:30 at night. Suddenly, her pains stopped...like when you take your car to the mechanic, it will stop making the noise it had been making for weeks!
The Dr. at the ER said to go home and come back if it started again. The next day, I got her into the Dr. for some labs and they said that her levels were OK and we should go home. The level they were talking about was her hematocrit.
She has a special condition that makes things like stomach pain a crisis for her, I am posting on her condition in a separate post for those who are interested in Spherocytosis.
My mom feelings were going off like crazy. I watched her all day Saturday and noticed that she was more yellow and lethargic. So, I called the real experts. Her hematologist at Children's hospital and they advised me to come in right away.
Most doctors have no idea what to even look for with her. Her crit level was ok (that is normally the one that will be way off) but several other levels were not good at all. It takes the experts to notice the warning signs with her.
Sure enough, she had had gall stones that sent her body into crisis. That was what the pains were about.Her liver function was way off and she was not doing good. Thankfully, they did pass and she recovered. By Monday she was ready to go home with warnings that they were going to want to see her in 3 days to talk about removal of her spleen and gall bladder.
Thursday came and we took the kids to Carrie's house so that my husband could go with me to the appointment. He normally does not come with me, but with talk of surgery I did not want to go alone.
We did labs and waited nervously. At the appointment, her doctor told me that her labs had continued to improve since Monday and they were not going to take out her organs right away! Thank God. He told me that he was prepared to do so if her labs had not improved.
We go back in one month to make sure that her levels continue to improve and that she does not have another crisis, so I guess we pray, wait and watch some more.
That same day, we picked up the kids and went to my Dr. in Everett. I was having trouble breathing. It was a terrible appointment. They kept me there for 3 and a half hours doing cardiac tests, chest x-rays and a ton of lab work.
I kept telling them that it was something with my lungs, not a heart thing. After 3 hours, the brilliant Dr. decided that I had anxiety and tried to send me home with anti-anxiety meds. I was very upset with his diagnosis. I knew that I was not having anxiety and that there was something wrong with my lungs.
After trying to convince him that I was not upset, and only making him not believe me more...I just wanted to leave. My 2 year old meanwhile, fell and cut open her forehead, needing 6 stitches. While they were waiting for me! I could hear her crying in the next room and knew that my other children were stressed out as well. Dad was a trooper the whole time.
I told him to do a pregnancy test before I would take anything he ordered. I was not going to take an anti-anxiety med, but he ordered some other things to help my breathing and lung inflammation.
While I was waiting on my meds, they ran down to the pharmacy to stop me from filling the prescription. Yes, I am pregnant with blessing #8. Thank God I did not let them bully me and I demanded a test first.
All I could do was laugh and praise God. I am sure the Dr. thinks that I am crazy. I was lauging with tears rolling down my face for joy.
I refused all his meds and went home with my tired, cranky family. The kids were so good during all of this, but I knew they had had enough.
Sure enough, some of my lab tests came back later that night that I have viral pneumonia. I was not happy with that Dr. who said I had anxiety. I have no history of anxiety but I do have a long history of asthma and bronchitis. Not to mention I had to go in again on Friday, sick as a dog and get some meds.
I am grateful for modern medicine..but why won't they listen to their patients? Or at least pay attention to symptoms? I had a very high heart rate (over 100 while resting and 140 after walking) and a very low blood pressure. I normally have perfect levels on both. I was wheezing and gasping for breath. Obviously, my body is fighting some infection. The fact that I did not have a fever made them dismiss any "real" illness possibility and claim anxiety. Hmmm. This is why I rarely go to the doctor. It takes something like pneumonia to get me even to go.
This has defiantly been a challenging week. A few friends brought meals (thank you!!) and my poor husband has had to take over some cooking. There was no homeschooling this week other than hit and miss math and reading. Such is life.
I am grateful for all of the prayers and support on our behalf.
I am grateful that my mom came to the hospital when my princess was admitted even though it was a LONG drive for her and she was at the Dr/hospital every other day this week with her MIL having surgery.
Now, I am praying to recover soon!